WHEN Kelsey Ferguson found out she was pregnant with a baby boy, she was completely and utterly over the moon.

After marrying her college sweetheart Scott in 2016, the couple had spent a year trying to have a baby and Kelsey sadly miscarried their first child at eight weeks.

With the help of fertility treatment, the couple found out they were expecting again in 2017,

In a personal essay for Love What Matters, the mum explained how they were told their son had a heart defect and a chromosomal abnormality at the 20-week scan – meaning it was unlikely he would survive the birth.

She recalled: "The doctor came in to the room and said, 'I’m sorry, he is terminal and will not survive.'

"Scott and I said we would not give up, and we would keep fighting for this baby until his last breath."

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As a result, Kelsey had to go into hospital for tests twice a week as the baby was measuring so small.

It was around this time that Scott started experiencing body aches, joint pain, a nasty cough and fever – but the couple assumed it was a cold brought on by his new job and their recent house move.

On 4 June 2018, Kelsey was admitted to hospital for monitoring and told she'd be induced the following week.

After Scott visited her that day, Kelsey and her friend acknowledged that he "looked pale" and wasn't himself.

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Overnight, Scott started coughing up blood and called an ambulance – which transported him to the same hospital as Kelsey.

Although he was originally placed in the Intensive Care Unit [ICU], Scott had improved so much by the afternoon that he was transferred into a regular room for monitoring.

"I was able to get escorted from my room to see him twice a day for a few hours at a time on Tuesday and Wednesday," Kelsey said. "He was still having a really hard time getting his oxygen levels up and was getting really frustrated."

When she didn't hear from him on Thursday morning, Kelsey assumed Scott must still be sleeping – but she later found out he'd been transferred back into the ICU.

Scott and I said we would not give up on our son, and we would keep fighting for this baby until his last breath

She explained: "I went down there and they told me they needed to put in a central line into his neck because they were going to do a procedure similar to dialysis where they would take out his blood, clean it, and put it back."

For the procedure, Scott had to be sedated and his lungs were in a much worse state than doctors expected – meaning he'd need to have a bypass.

Tragically, the dad-to-be went into cardiac arrest during the operation.

Looking back on the moment she was told, Kelsey said she immediately started throwing up before then yelling: "Is he gone?"

Doctors tried for another hour to revive Scott and did eventually get a pulse – so he was swiftly taken back to the ICU.

At this point, Kelsey was told Scott wasn't in a stable condition and they wouldn't know what damage the cardiac arrest would have done to his brain.

It felt like a bad dream that I would wake up from. Even now, it feels like it couldn’t have been real.

"After speaking to the doctor, I was able to be with Scott for a bit. I sat next to his bed holding his hand, telling him how much his son and I loved him," she said.

The next day, Kelsey was trying to get some sleep in a waiting room near around the corner from Scott when she was given the devastating news that there was nothing more doctors could do.

She continued: "I fell to the ground screaming. I threw up some more and couldn’t even believe this was real. It felt like a bad dream that I would wake up from. Even now, it feels like it couldn’t have been real."

After that, Katie rushed to his side and held his hand for hours – but after almost fainting several times, her mum urged her to leave.

The mourning mum-to-be later found out that her husband was suffering from the autoimmune disease Wegener’s Vasculitis.

The day after Scott's funeral, Katie was induced and was well aware that she might now lose her baby too.

On 12 June, Katie welcomed baby Maxley Russell.

She added: "He was 2lbs 4oz and breathing on his own. He proved the doctors wrong, and hasn’t stopped since. Maxley does have a heart defect and a chromosomal abnormality, neither of which are terminal."

After spending the first four months of his life in hospital, Katie was able to take Maxley home in September – just three days after his dad's birthday.

The following January, he underwent open heart surgery.

Although the operation itself went well, his condition plummeted in the following days – and in a heartbreaking twist, he eventually ended up on the same life support machine as his dad.

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Amazingly, Maxley pulled through that time and Katie reminds her son everyday how much his daddy loves him.

Read more about Katie's journey on her blog Honeyed Heart.

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